The Parelsnoer Institute (PSI) is a unique partnership between the eight university medical centres in the Netherlands. The goal of the project is to set up an infrastructure for collecting clinical data and biomaterial from patients, to get better insight into common diseases and to accelerate the development of new therapies.
The project focused initialy on eight diseases; neurodegenerative disease, leukemia, rheumatoid arthritis, inherited bowelcancer, diabetes mellitus, renal failure, cerebrovascular accident, and inflammatory bowel disease. Each UMC takes responsibility for the coordination of one of the diseases, the so-called pearls. In the meantime new pearls are added as on congenital heart disease (CONCOR), coordinated by the Interuniversity Cardiology Institute of the Netherlands.
The UMCG coordinates the Pearl for renal failure. However, UMCG researchers and clinicians are also involved in the other Pearls as the UMCs share the responsibility to work together towards a common goal in the project. Every UMC has appointed a project leader who is responsible to bring about the facilities for all pearls within the UMC and is the mediator for the board. PSI has entered into external partnerships amongst which is LifeLines, the large-scale and long- term population study initiated by the UMCG.