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Contributing to Eurocat’s research

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​​​​​​​​​As the parent of a child with a congenital anomaly, or as an attending health care professional, you can help increase our understanding of how and why congenital anomalies occur. With your experience you can help contribute to preventing similar anomalies in the future.

If you would like to contribute to Eurocat’s database, you can send an email to Contact. We will then get in contact with you.

If you have questions or would like more information, please email at the address above or call (050) 361 71 15.

How does the study wo​rk?

We only collect information from you as a parent in writing. There is no physical examination required of yourself or your child, and no need to see us in person. If you do participate, we will ask for some medical information about your child.

We also ask you to share your pharmacy’s contact information so that we can find out what medications you were prescribed just before and during your pregnancy. After that, you will receive a questionnaire from us, either on paper or online. You can fill this out at home and send it back. The questions are primarily about the nature of your pregnancy, your child and your health. Filling out the questionnaire takes about 30 minutes.

Contributing to our research carries no consequences for your health insurance premiums. Eurocat never shares information with insurers.

​​Eurocat brochure​

More information is available in the 
E​urocat -  r​esearch into congenital anomalies​​.

Information about yo​​ur child

The power of Eurocat’s research lies in collecting data about large numbers of individuals. Your child’s data is kept anonymous in ​our study and can never be personally identified. If you would like to know more about the source of your child’s congenital anomaly, please get in contact with your general practitioner. He or she can refer you to a specialist, for example a clinical geneticist.

Privacy

We find it crucial to facilitate quality research. Both national and international researchers can therefore put in requests to carry out research using Eurocat data. For parents it is important to know that these researchers cannot see any personally identifying information; researchers receive only anonymized data.

We only use personal information like your name and address to, for example, get in contact with you about the questionnaire. Your persona​​​l information is not shared with others. For more information about the handling of data about your pregnancy and your child, please see the JRC privacy document. More information is available in legal information about the handling of personal data​​.

Parents and children (regardless of their age) always have the right to have the information about them registered in Eurocat changed or removed. This can be arranged via phone, e-mail or in writing. If you have questions about privacy or the handling of your data, you can contact us at (050) 361 71 15 or via e-mail: Contact.​​​